This is the latest update on the baby in my last post:
Just wanted to be sure that Maegan was okay with me posting updates on Crew on my blog before I posted an update.
Here is the latest from Maegan:"Crew is stable; his vitals are good but he still cannot breathe optimally on his own. His liver has begun to shrink as the chemo destroys the cancer cells, but his kidneys are producing high levels of acid as the cells are flushed out.. this is both good and bad as it means that the cancer cells are being flushed out, but also that his kidneys are taking a beating. He had a genetic test done that came back positive for a gene that meant it's an agressive form of Neuroblastoma, so he is now being given a medication that is helping his red blood cells/bone marrow to come up faster so that they can start the 2nd chemo treatment faster (2-4 days sooner than expected.)
We have a long road ahead of us. He is on a regular ventilator now but still kept unconcious to give his body a chance to heal. He moves his legs and arms around in response to touch. Obviously I can't hold him because he is hooked up to so many machines; he has a tube or catheter in every orifice in his tiny body. He has an arterial catheter sewn into his right thigh to monitor his blood pressure and a tube sewn into his left side to help drain a large pocket of fluid.
Jerry and I are taking shifts with him so that one of us is always there with him around the clock. I am beyond exhausted but I can't stop to think about it or I will just break down. Please keep me in your thoughts- I really appreciate it.
Please continue to keep this family in your thoughts and prayers at this time. They need a miracle and we are praying that the One who heals will help comfort the family and Crew during this time.
4 years ago